Uterine fibroids are a common health concern that affect millions of individuals assigned female at birth.[1] However, the conversation surrounding this condition often neglects the experiences of transgender and non-binary individuals. In the pursuit of inclusive healthcare, it is crucial to acknowledge the unique challenges faced by individuals who don’t identify as women who have uterine fibroids.
Understanding Uterine Fibroids
Uterine fibroids are non-cancerous tumors that develop within the uterus. Uterine fibroids often include heavy menstrual bleeding, abdominal bloat, and pelvic pain.[2]
Traditionally, discussions about uterine fibroids have been framed within the context of cisgender women’s health, inadvertently excluding transgender and non-binary individuals from the discourse.
Challenges Faced by Transgender and Non-Binary People with UF
There are a number of specific challenges facing people who don’t identify as women after a diagnosis of uterine fibroids.
Misgendering and Stigma
Transgender and non-binary individuals navigating healthcare systems often face misgendering and insensitivity.[3] The association surrounding uterine fibroids as a “female condition” can exacerbate these challenges, making it difficult for them to seek proper care. Creating a supportive and understanding healthcare environment is essential for breaking down these barriers.
Lack of Research and Resources
The scarcity of research focusing on uterine fibroids in transgender and non-binary individuals exacerbates the challenges they face. Healthcare providers may lack the necessary knowledge to address their specific needs. Increased research and resources are necessary to bridge this knowledge gap and improve the quality of care for everyone.
Inclusive Healthcare Practices
The following steps should be taken by healthcare providers in order to create a safe space for their transgender and non-binary patients.
Sensitive Care
Healthcare providers must receive training in cultural competence to better understand and address the unique needs of transgender and non-binary patients. This includes using affirming language, respecting chosen names and pronouns, and creating a welcoming environment that values diversity.[4]
Expanding Research
Encouraging and funding research that specifically investigates uterine fibroids in transgender and non-binary individuals is crucial. By understanding the impact of hormones, surgical interventions, and other factors on the development and management of uterine fibroids, healthcare professionals can tailor treatments to the individual’s unique needs.[5]
Advocacy and Visibility
Elevating the voices of transgender and non-binary individuals in discussions about uterine fibroids is essential for raising awareness and fostering a more inclusive healthcare landscape. Advocacy efforts can help destigmatize fibroids and ensure that everyone, regardless of gender identity, receives appropriate care and support.
A More Inclusive Future
In the journey towards health care that’s inclusive to everyone, it is imperative to recognize and address the unique experiences of transgender and non-binary individuals dealing with uterine fibroids. By acknowledging the challenges they face, fostering culturally competent care, expanding research efforts, and promoting advocacy and visibility, we can work towards a healthcare system that prioritizes the well-being of all individuals, irrespective of gender identity. It is only through these collective efforts that we can truly go beyond gender and ensure equitable access to care for everyone affected by uterine fibroids.
[1] Li, B., Wang, F., Chen, L., & Tong, H. "Global Epidemiological Characteristics of Uterine Fibroids,” Archives of Medical Science, Volume 19, Issue 6, October 2023, Pages 1802–1810.
[2] Anne Zimmermann, David Bernuit, Christoph Gerlinger, Matthias Schaefers, and Katharina Geppert, "Prevalence, symptoms and management of uterine fibroids: an international internet-based survey of 21,746 women," BMC Women's Health, 2012; 12: 6.
[3] Jay Bindman, Azze Ngo, Sophia Zamudio-Haas, and Jae Sevelius, "Health Care Experiences of Patients with Nonbinary Gender Identities," Transgender Health, October 2022, Volume 7, Issue 5, Pages 423–429.
[4] Heidi Moseson, Noah Zazanis, Eli Goldberg, Laura Fix, Mary Durden, Ari Stoeffler, Jen Hastings, Lyndon Cudlitz, Bori Lesser-Lee, BA, Laz Letcher, Aneidys Reyes, and Juno Obedin-Maliver, "The Imperative for Transgender and Gender Nonbinary Inclusion," Obstetrics and Gynecology, May 2020; 135(5): 1059–1068.
[5] Mu Lv, Juanjuan Yu, Yan Huang, Jie Ma, Jun Xiang, Yanqiu Wang, Linxia Li, Zhenbo Zhang, and Hong Liao, "Androgen Signaling in Uterine Diseases: New Insights and New Targets," Biomolecules, November 2022; 12(11): 1624.